May the Fourth Be With You

May 3, 2016

“The morning has been really hard. We changed my medicine last night. I doubled my Saphris (which I had changed to eliminate my symptoms on Risperdal). I dropped my morning Lithium. I was doing well and then started becoming agitated. I, then, became tired and went back to sleep. I am feeling a bit better now. I am journaling, did yoga, and prayed. I am feeling a bit foggy. 

Hunter’s birthday is tomorrow. I am a little nervous about how the day will be. I miss him so much. I want to hug him tomorrow. I hate the firsts we have to go through without him. It reminds me that I will keep aging and he will not. I don’t want to be alone. I don’t want to get older without a sibling. It takes my breath away to think about it. I want a moment for us on his birthday. To feel our bond and know he is okay. 

Psalm 139:11-12 – “If I say, “Surely the darkness will hide me, and the light become night around me,” even the darkness will not be dark to you; the night will shine like the day, for darkness is as light to you.

Reminds me of how limited my perception is to God. He doesn’t see my circumstances as I do. He sees the whole picture. I may feel I am in such pain and darkness but he sees through it all.

Psalm 135:3-4 – “Praise the Lord, for the Lord is good; sing praise to his name, for that is pleasant. For the Lord has chosen Jacob to be his own, Israel to be his treasured possession.”

The Lord chose Jacob. He knew Essau would trade his birthright for food. He knew Jacob would capitalize on his brother’s weakness. He knows what will happen to me. The Lord vindicates us and has compassion on us.

May 5, 2016

“Today has been a good day. Yesterday was harder. It was Hunter’s Birthday. We went to yoga class. I bit off too much with the class I chose. Brian and I kept looking at each others with each new pose. We all wore Star Wars shirts, released white balloons with letters tied to them, and ate dirt dessert. To cap it off we watched Star Wars: The Force Awakens.”

Changing medications to try and reduce side effects was exhausting. Each one would change how I felt, possibly bringing on new or worse side effects. It was a constant rollercoaster. Each change gave me hope we were about to find the right combination. However, I had no understanding of how long this would take. 

Hunter’s Birthday was May 4. It was so hard to face that day. I couldn’t handle the fact that I was aging and he had stopped. I kept seeing visions of myself looking in the mirror as an old woman and his picture sitting there with his twenty five year old image. Never getting a single day older, never getting wrinkles, never having more children or growing a family. I mourned aging, not for myself but knowing he couldn’t.

I wanted to do things, that day,  that reminded me of him, but had to be careful not to overwhelm myself with grief. Yoga was super helpful, but I decided to increase our intensity level. That is a pitfall of my personality, when something is enjoyable, I have to crank it up a level. Sometimes this gets me in trouble. 

We went to Disney Store to get everyone Star Wars shirts. It was so fitting, as Hunter loved Star Wars. He was born on May the Fourth, so what can you expect. Reaching back for good memories from happier times was a positive experience. It was great to write him a letter and explain how I was feeling. The kids and I tied the letters to the balloons and took them outside to release them. When we let them go, a huge gust of wind came. The balloons we lifted up along the roofline and went down the backside of the house. When we got to the back of the house to see them float away, they were gone. We never found a single one of the balloons. It was as if they really did go directly to him. The Lord was faithful to provide me comfort during these days and to remind me that he saw me right where I was, in the midst of my suffering. I was not there by accident. He had placed in that exact moment at that exact time. 


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